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Old 12-13-2008, 11:06 AM   #11
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PaleHorse has been able to stave off a serious crash for me on several occasions, but generalized improvement hasn't been accomplished. From that I can say it's possible to have an effect on CFS using subtle-energy, but I don't yet know whether general improvement or a cure could be affected.

Rath--Were you diagnosed with aplastic anemia before the CFS diagnosis? It seems to me anemia could cause many CFS-like symptoms, and would make a CFS diagnosis more difficult. In the US CFS is diagnosed by process of elimination (IE, nothing else is causing the symptoms, so it must be CFS). I'm still waiting for the genetic test they should be working on to be developed.

High psi fields MIGHT aggravate fibromyalgia, so you may try a generalized house-cleaning and lowering ambient energy levels, and see if that helps, Mindless--worth a try, and I'm curious to know what happens.
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Old 01-14-2009, 09:32 PM   #12
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This may be old news, I don't know, but I came across a description of the Marshall Protocol which is being used to treat CFS and a few other chronic diseases (successfully, at least in some cases). It sounded intriguing at least--has anyone else heard of it or had any experience with it?
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Old 01-14-2009, 11:06 PM   #13
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I have never heard of the marshall protocol. I did work with a doctor (now retired) who was very interested in CFS and had an interesting treatment protocol based on a book he let me read. I could shoot myself for forgetting it now. He had them try several meds while in the office over a couple of hours to see if they got rapid results, then some of the patients he sent to me for regular intravenous fluids, magnesium and lidocaine-- sometimes daily.

I at first refused to do the IVs because I wasn't familiar with the (possibly dangerous) meds in this application. The book convinced me and the patients had really good results... meaning symptoms abated for up to 2 weeks at a time. Not a cure, but a miracle for some of them nonetheless as they were able to function.

There is a medication called Ampligen undergoing test trials that shows a lot of promise.
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Old 01-15-2009, 02:24 AM   #14
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I have problems with the idea of avoiding a vitamin that has recently been proven to dramatically reduce the risk of many forms of cancer when taken in sufficient amounts (Higher than the US RDA). Of course, those of us with genetic disorders can't always pick what kind of trade-off might be needed. I am going to wait and see on this one, though, as my understanding is that the genes discovered that link to CFS have to do with how the body handles stress reactions.
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Old 01-15-2009, 04:46 AM   #15
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I can't find what I said on this thread that would be worth a try. Nor can I remember where it is on another thread.
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Old 01-15-2009, 09:00 PM   #16
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I think I meant using psi healing on fibro.
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Old 01-15-2009, 09:40 PM   #17
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ok thanks.
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Old 01-17-2009, 07:26 AM   #18
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I had a long chat today with Dr. Beales, MD. He is an internal medicine specialist who has devoted his life to understanding and treating CFIDS and FM. He has 2 sons with it. He attends and lectures at national conferences on the subject. He said he would be happy to talk to any friend of mine who wanted to call him.

The book he gave me to read was called The Doctor's Guide To Chronic Fatigue Syndrome: Understanding, Treating, And Living With Cfids (Paperback) by David S. Bell. That's where I was convinced of the safety and efficacy of using IV magnesium and lidocaine to help with the subset of patients experiencing profound aches and pains.

He highly recommends the CFIDS Chronicle, a periodical produced by the CFIDS Association of America [www.cfids.org] at POB220398 Charlotte, NC 28222-0398. They also produce the Research Review, which he recommends. He says both are very informative about current research and findings.

He gave me a general overview of the current thought. [from my notes]
CFIDS is triggered by an infection or other trauma with alters the genome. Depending on where the genome has alterations, victims will be affected in the brain and other end organs in different ways. Downstream there is autoimmune and antiviral pathway damage... protein and enzyme and mitochondrial function are affected.

Hope this is helpful. I can't pretend to be an expert, but I did see dramatic improvement in the patients that received magnesium and lidocaine therapy. They were some of the most grateful people I have ever treated... and most people that you stick a needle into aren't real thrilled about it. ;)
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Old 01-17-2009, 05:58 PM   #19
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I don't know...while it's not impossible, 'an infection which alters the genome' seems a bit out-there to me. What's more, once altered, clearing the infection won't cause the genome to return to normal--obviously.
What caused them to lean in this direction, and away from typical heredity as an explanation for the genetic differences? A common mutation WAS found in those who have CFS just a few years back.
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Old 01-18-2009, 04:11 AM   #20
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You would have to ask him. He's the expert, one of the top docs in the US. I'm just trying to write down what he was telling me.

Maybe the mutation was an alteration in the genome that occurred after a trigger event such as an infection. Maybe genetic heritage makes some people more susceptible to these alterations... like I said, I'm not all that knowledgeable on the subject, just trying to gather info for those that are interested.

My specialties are trauma and infectious disease.
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